Child Abuse and Neglect, Missing Children, NIH Institutes Resources

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Information & Referral Resources

Just a note: These are resources that we have come across that MAY! prove helpful to you. Please understand, we ARE NOT recommending or endorsing any of them. It is up to you to determine if they offer something you need and whether or not it is appropriate for your situation.

Child Abuse and Neglect

National Center for Missing & Exploited Children
Hotline: 800-843-5678 Telephone: 703-235-3900

Child Help USA
Info & referrals to local agencies; crisis counseling. Info & referrals to local agencies; crisis counseling.
1-800/4-A-CHILD (24 hrs)

National Council on Child Abuse & Family Violence
Info & referrals on child abuse & other types of family violence.
1-800/222-2000 (24 hrs)

National Clearinghouse on Child Abuse & Neglect
Telephone: 800-FYI-3366, 703-385-7565

National Resource Center on Sexual Abuse
Telephone: 800-543-7006

National Committee to Prevent Child Abuse
Telephone: 312-663-3520

National Adolescent Perpetrator Network
Telephone: 303-321-3963

Military Family Resource Center, Military Family Clearinghouse
Telephone: 800-336-4592, 703-696-5806

National Criminal Justice Reference Service
Provides information on violent offenders.
Telephone: 800-851-3420

National Clearinghouse on Runaway & Homeless Youth
Telephone: 301-608-8098

National Maternal and Child Health Clearinghouse
Telephone: 703-821-8955 ext. 254

National Center for Education in Maternal & Child Health
Telephone: 703-524-7802

National Resource Center on Child Abuse & Neglect
Telephone: 800-227-5242, 303-792-9900

National Victims Resource Center
Provides information on perpetrators and victimization trends.
Telephone: 800-627-6872

National Information Clearinghouse for Infants with Disabilities and Life Threatening Conditions
Telephone: 800-922-9234, ext. 201, 803-777-4435

CSAP National Resource Center for the Prevention of Perinatal Abuse of Alcohol and other Drugs
Telephone: 800-354-8824, 703-218-5600

National Clearinghouse for Alcohol & Drug Information
Telephone: 800-729-6686, 301-230-2687

National Sudden Infant Death Syndrome Information Center
Telephone: 703-821-8955 ext. 249 or 474

Missing Children

Vanished Children's Alliance
Helps victims; conducts investigations; training & materials, registry; counselors; listening.
800-VANISHED (24 hrs)

Child Find
Helps locate children; helps lost children. Info for parents who have abducted their children in violation of a court order.
800/426-5678 (day), 800-A WAY OUT, (24 hrs)

National Center for Missing & Exploited Children
Info. re: missing/exploited youth; helps locate missing children.
800-843-5678

Runaway Hotline
800-231-6946 (24 hrs)

National Runaway Hotline
Crisis counseling, Info & Referral for runaways & youth with other problems.
1-800-HIT-HOME (24 hrs)

National Runaway Hotline
Info & Referral for runaways re: shelter, counseling; food pantries; transportation.
1-800-621-4000 (24 hrs).

Youth Issues/Problem Parenting

Covenant House NineLine
Referrals for youth or parents re: drugs, homelessness, runaways, etc. Message relays, reports of abuse. Helps parents with problems with their kids. If all counselors are busy, stay on line & one will be with you as soon as possible.
1-800-999-9999 (24 hrs)

National Adoption Information Clearinghouse
Telephone: 301-231-6512

National Information Center for Children & Youth with Disabilities
Telephone: 800-695-0285, 202-416-0312

Back up to: Child Abuse & Neglect, Missing Children

NIH'S INSTITUTES

National Institute on Aging 301-496-1752

National Institute on Alcohol Abuse and Alcoholism NIAAA 301-443-3860

National Institute of Allergy and Infectious Diseases NIAID 301-496-5717

National Institute of Arthritis and Musculoskeletal and Skin Diseases NIAMS 301-496-8188

National Cancer Institute NCI 301-496-5583

National Institute of Child Health and Human Development NICHD 301-496-5133

National Institute of Diabetes and Digestive and Kidney Diseases NIDDK 301-496-3583

National Institute on Deafness and Other Communication Disorders NIDCD 301-496-7243

National Institute on Drug Abuse NIDA 301-443-1124

National Institute of Environmental Health Sciences NIEHS 919-541-3345

National Eye Institute NEI 301-496-5248

National Institute of General Medical Sciences NIGMS 301-496-7301

National Heart, Lung, and Blood Institute NHLBI 301-496-4236

National Institute of Mental Health NIMH 301-443-4513

National Institute of Neurological Disorders and Stroke NINDS 301-496-5751

Back up to: Child Abuse & Neglect, Missing Children, NIH's Institutes

Additional Resources-Books & Pamphlets

Aging

"Directory of Nursing Homes," 1990-91, 1,456 pages, $225. ORYX Press, 4041 North Central,
Suite 700, Phoenix, AZ 85012, Tel: (800) 279-6799.
Comprehensive listing of nursing home facilities and services in the U.S.

"Resource Directory for Older People," 1989, 24 pages, $10. National Institute on Aging,
9000 Rockville Pike, Bethesda, MD 20892, Tel: (301) 496-1752. (An updated directory is in process).
Contains the names, addresses and telephone number.

Aids

"The National Directory: Local AIDS Services," 1991; call for price. U.S. Conference of Mayors, AIDS program,
1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330.
Directory lists services related to AIDS in communities throughout the U.S. It includes local and state health departments, community based organizations, social-support services, federal agencies, hospitals and home health care agencies. Includes comprehensive listing of clinical treatments, PNA chapters, and state and local AIDS and HIV treatment resources.

"Funding Sources for AIDS Activities: Prepared for the 2nd National Conference on the Prevention of HIV Infection Among Racial and Ethnic Minorities in the U.S.," 1988. U.S. Conference of Mayors,
1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330
Directory lists foundations which provide support for AIDS programs and AIDS-related activities in the areas of services, education, and research.

"The Raven's Guide to AIDS Prevention Resources," 1991, 45 pages, free. National Native American
AIDS Prevention Center, 3515 Grand Ave., Suite 100, Oakland, CA 94610. Tel: (800) 283-2436
A Catalog of programs, materials, and resources focusing on AIDS prevention among Native Americans. Includes directory of resource agencies.

Alcohol & Drug Abuse

"National Directory of Alcohol and Drug Abuse Treatment and Prevention Programs," 1989, approx. 400 pages, single copy free.
National Clearinghouse for Alcohol and Drug Information, P.O. Box 2345, Rockville, MD 20852.
Tel: (800) 729-6686; TDD (800) 487-4889
Nationwide listing of the location of programs. (Does not include descriptions of services provided by the programs).

Amputation

"American Amputee Foundation: National Resource Directory," 1991, $25.
American Amputee Foundation, Inc., P.O. Box 250218 Hillcrest Station, Little Rock, AR 7225, Tel: (501) 666-2523
Major reference tool for amputee related information, direct services and products.

Amyotrophic Lateral Sclerosis (ALS)

"Why Didn't Somebody Tell Me About These Things?" 139 pages, $8.50.
Amyotrophic Lateral Sclerosis
Association, 21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364. Tel: (802) 782-4747.
A collection of information and illustrations of equipment, aids, clothing, skills and other things of interest to the ALS patient and patients with similar diseases and disability conditions.

Assistive Technology

"Assistive Technology Sourcebook," 1990 576 pages, $60.
RESNA PRESS, 1101 Connecticut Ave., N.W., Suite 700, Washington, DC 20036-4303. Tel: (202) 857-1199

Complete guide to assistive technology including information resources, equipment evaluation; personal care/home; education/children, employment, recreation/leisure, mobility, computer access, etc.

"Directory of Assistive Technology Data Sources," 1989, 14 pages, $10. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255
Annotated Directory of Assistive Technology Data Resources helps disabled individuals, parents, and educators to find current product information. Both on-line and print data bases are available.

"Assistive Technology Resource Directory," 1990, 62 pages, free. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of resources to meet the need for information and awareness of assistive technology resources.

Blind/Visually Impaired

"Vision Resource List," 1991, 13th edition, free. VISION Foundation, Inc., 818 Mt. Auburn Street,
Watertown, MA 02172. Tel: (617) 926-4232. Available in large print or cassette.

"Resources for Elders with Disabilities," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.

"Rehabilitation Resource Manual: VISION," standard print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.

"Living with Low Vision: A Resource Guide for People with Sight Loss," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.
Biannual resource directory listing agencies and other organizations which provide services for blind and visually impaired persons.

"Volunteers Who Produce Books, Braille, Tape, Large Type," 1988, 95 pages, free. Reference Section,
National Library Service for the Blind and Physically Handicapped, Library of Congress, Washington, DC 20542.
Tel: (202) 707-5100. Lists (by state) special education agencies, resources for visually impaired persons, proofreaders and producers of braille, recorded and large print.

"Resource Guide for Persons with Vision Impairments," 1991 (updated monthly, free).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (voice), (800) 284-9482 (TDD).
Provides description of different adaptive computer related aids and products that are available to individuals with vision impairments.

Children/Youth

"Directory for Exceptional Children," 1990-91, $50 plus $2.84 4th class postage.
Porter Sargent Publishers Inc., 11 Beacon St., Boston, MA 02108. Tel: (617) 523-1670.
Over 3000 schools treatment centers, speech and hearing societies, state and private residential facilities, and other services for disabled children are described and listed for each state.

Data Sources

"Special Ware Directory," 1985 approx 100 pages, $24.75. Oryx Press, 4041 No. Central, Suite 700,
Phoenix, AZ 85012. Tel: (800) 279-6799.

Software for Special Education:
"Directory of Software Data Sources, 1990," 30 pages, free. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, Virginia 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of software databases to assist special educators in their search for high quality
instructional software.

Deaf/Blind

"Directory of Agencies Serving Individuals who are Deaf-Blind," 1991, 150 pages, call for current price,
Helen Keller National Center, Community Education Department, 111 Middle Neck road, Sands Point, NY 11050, Tel: (516) 944-8900. Agencies are listed by state with description of services.

Deaf/Hearing Impaired

"American Annals of the Deaf: Reference Issue: 1991," 135 pages, $22.50.
American Annals of the Deaf, 800 Florida Avenue, P.O. Box 6, Washington, DC 20002-3695. Tel: (202) 651-5340
This reference issue published annually in April, supplies information on programs and services for deaf persons in the United States including educational, rehabilitation, social and recreational resource. Most information is listed by state.

"International Telephone Directory of TDD Users: 1991," approximately 250 pages, $15 fee includes directory, a listing in the directory and a quarterly newsletter subscription.
Telecommunications for the Deaf, Inc., 814 Thayer Ave., Silver Spring, MD 20910. Tel: (301) 589-3006 (TDD), (301) 589-3786 (Voice)
Lists TDD numbers for agencies and organizations, and those of individual members of TDI.

"Resource Guide for Persons with Hearing Impairments," 1991 (updated monthly).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (Voice), (800) 284-9482 (TDD)
Provides description of different adaptive computer related aids and products that are available to individuals with hearing impairments.

Developmental Disabilities

"1990 Resource Guide to Organizations Concerned with Developmental Disabilities," (annually), 244 pages, free.
American Association of University Affiliated Programs for Persons with Developmental Disabilities,
8630 Fenton St., Suite 410, Silver Spring, MD 20910. Tel: (301) 588-8252
Listing of university affiliated programs, satellite centers, mental retardation research centers, selected government agencies and programs and other resources.

"Resource Directory of Scientists and Engineers with Disabilities," 1987.
Project on Science, Technology and Disabilities, American Association for the Advancement of Science, 1333 H St., N.W., Washington, DC 20005. Tel: (202) 326-6672 (Voice/TDD)
A reference listing of over 950 scientists with disabilities, many of whom are available to consult in areas such as laboratory and curriculum adaptations for disabled accessibility, and on their particular scientific disciplines.

Down Syndrome

"Directory of Programs and Services for Children with Down Syndrome, Ages 0-6," 1991, free.
National Down Syndrome Society, 666 Broadway, New York, NY 10012. Tel: (212) 460-9330, (800) 221-4602
Listing of programs, services and age groups served.

"Parent Group Network," 1991, National Down Syndrome Congress, 1800 Dempster St., Park Ridge, IL 60068-1146. Tel: (800) 232-6372.
Listing of names, addresses and telephone numbers of parent groups/contacts throughout the U.S. and in other countries who are willing to serve as resources within their geographical area. Listing provided on a state level.

Employment

"Meeting the Needs of Employees with Disabilities," standard print, 1991.
Resources for Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455

"Labor Unions and Disability: A Manual for Labor Organizations and their Members and Rehabilitation Organizations, Employment Specialists, Job Coaches, Rehabilitation Counselors and Advocates." 1990, $3.00, 31 pages.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (704) 588-2800
Guidebook is directed at labor unions and their members to inform them regarding the productive capacities of persons with disabilities and strategies for employment. Also targets rehabilitation and employment service agencies and organizations to increase their knowledge and role of labor unions.

"Labor Unions and Disability. Guidelines for Employment Specialists, Counselors, Job Coaches and Advocates." 1990, 13 pages, $1.00.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Guidelines for employment specialists, counselors, etc., involved in job development, training, placement and advocacy to become more familiar with labor unions and how to include them more effectively in the placement process.

"Labor Unions and Disability Guidelines for Labor Unions and their Members," 1990, 36 pages, $1.75. Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Designed to enlist the participation and support of organized labor in expanding employment opportunities and options for persons with disabilities.

Financial Aid/Assistance

"Financial Aid for the Disabled and Their Families, 1990-91, 309 pages, $35.00 + $3.00 for shipping.
Reference Service Press, San Carlos Industrial Park, 1100 Industrial Road, Suite 9, San Carlos, CA 94070. Tel: (415) 594-0743
A list of: Scholarships, Fellowships, Loans, Grants, Awards and Internships designed primarily or exclusively for the disabled and their families; status sources of benefits and reference sources on financial aid.

General Disability

"Case Management Resource Guide," 1991. 4-volume set, $60.00/volume, $195 for set.
Center for Consumer Healthcare Information, P.O. Box 16067, Irvine, CA 92713. Tel: (800) 627-2244
A directory of homecare, rehabilitation, mental health and long-term care facilities.

"Resources for People with Disabilities and Chronic Conditions," standard print, 1991. Resources for
Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455

"THE FIRST WHOLE REHAB CATALOG - A Comprehensive Guide & Products and Sources for the Physically Disadvantaged," 1990, 240 pages, $16.95.
Betterway Publications, Inc., P.O. Box 219, Crozet, VA 22932. Tel: (804) 823-5661
Lists thousands of sources for adaptive equipment and specialized supplies and services for disabled individuals. Principal listing categories include: daily living, personal care, access, communication, mobility, transportation, health, fitness, recreation, education and vocation.

General Health "Consumer Health Information Sourcebook," 1990, 224 pages, $39.50.
ORYX Press, 4041 North Central, Suite 700, Phoenix, AZ 85012. Tel: (800) 279-6799
Disseminates health information to the general public. Provides descriptive evaluations of some 750 books, 79 popular magazines and newsletters, over 700 pamphlets, 30 health information clearinghouse and information centers, hotlines, etc.

"Health Information Resources in the Federal Government", 1990, 61 pages, $3 handling fee.
ONHIC, P.O. Box 1133, Washington, DC 20013-1133. Tel: (800) 336-4797 or (301) 565-4167
Directory encompasses selected federal and federally sponsored health information resources that ONHIC has found useful in responding to health inquiries.

Genetic Disorders

"International Directory of Genetic Services," 1990, 74 pages.
The March of Dimes Birth Defects Foundation, 1275 Mamaroneck Ave., White Plains, NY 10605. Tel: (914) 428-7100
Directory of Clinics that provide comprehensive genetic services worldwide.

"A Guide to Selected National Genetic Voluntary Organizations," 1989, 223 pages, free.
National Center for Education in Maternal and Child Health, 38 and R Streets, N.W., Washington, DC 20057. Tel: (202) 625-8400
Lists organization by subject; provides a description of purposes of each organization and publications available.

Prescriptions-Low Cost

Pharmaceutical Patient Assistance Directory Line- 800-762-4636. Provides a directory of various pharmaceutical assistance programs for persons who cannot afford prescriptions on their own.

If you come across a group, organization or other resource you think should be listed here,
please email us with the info. Also, if there's something we need to update, please let us know.

Back up to: Child Abuse & Neglect, Missing Children, NIH's Institutes, Additional Resources

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